I have Arnold-Chiari malformation ACM. I am 35 now, i have till i am 47, till i die. 2 of my kids were kidnaped years ago, they are now back in my life. I am concerned they may have ACM also. My mother june ann gibbs had it and died from it also. The doctors say it may be congenital or hereditary. I do not have anymore info then what i have given. I want to know who else in my family may have had acm. Where did it come from. I know theres not much to go on but. I want to have info for my kids befor i die. I dont know why, i hope it will help them latter on in life, if they need or want it.
My mother June ann gibbs, my mothers mother was dourthy lovely i think.
My father herbert e tozer.
Most of my family was from south nj.
I understand medical is even harded but any info would help